The MRI was last Monday and the follow up appointment was last Friday. This is what we know. Jackson has what is called optic nerve hypoplasia. ONH is the most common defect of the optic nerve. It is the third leading cause of visual impairment in children. It is a generally stable, non-progressive eye condition, and visual impairment ranges from mild to severe. The term hypoplasia means smaller than normal. Optic Nerve Hypoplasia is a congenital condition resulting in the underdevelopment of the optic nerve. ONH will not get worse, but can actually improve in early childhood. Another condition called septo-optic dysplasia can present itself with OND, with possible brain and endocrine abnormalities. Jackson DOES NOT have this. The MRI ruled it out. VERY THANKFUL!! The opthamologist saw him with his glasses for the first time at Friday's appointment. She was very pleased with his improvement. She did some testing and he was tracking! The glasses are obviously correcting his astigmatism and farsightedness. Yeah Jackson! The first pair of glasses were replaced by new ones that fit closer to his eyes and look more comfortable.
Jackson will have his surgery on February 10th at Doernbecher to put his intestines back together and he will then forever be rid of the stoma. The doctors will also repair his hernia during this surgery. They anticipate being in the hospital for a few days.
